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Old 07-30-2007, 07:48 AM
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rumpled rumpled is offline
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Join Date: Jun 2007
Location: NJ
Posts: 228
15 yr Member
rumpled rumpled is offline
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rumpled's Avatar
 
Join Date: Jun 2007
Location: NJ
Posts: 228
15 yr Member
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The doc says he thinks I have MG despite the bloodwork. He is giving me a trial of mestinon. In addition, he wants me to see other doctors in NYC that are specialists that are a motor neuron group at Columbia as well as a rheumatologist at Mt Sinai. He says I am a bit complex since my eyes seem to be ok but my arms and legs are weak. I am not keen on the steroids and he knows it and so did not push it despite my husband pushing for me to take more. I lived with Cushing's for at least 12 years and it destroyed my muscles and I blame it for being in the sorry shape I am in now. So at least he wants to send me off to better docs. I am seeing another local doc today to see what he thinks.
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Cyclical Pituitary Cushing's, Addison's via bilateral adrenalectomy, Growth Hormone Deficent, Migraines, Trigeminal Neuralgia, Hashimoto's, Hypothyroid, Myasthenia Gravis?
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