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Member
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Join Date: Oct 2020
Posts: 180
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Member
Join Date: Oct 2020
Posts: 180
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Need Neuro-Pulmo Badly
I had the fortune of seeing One of these Back in 2008 an 2016 at Mayo Clinic. When I last went back they wouldn’t let me have him because of Covid and his job in transplants and the new Very poor doctor who referred me back only to Neurologist there. Short of ER I really can’t get breathing help here where I live. On 3-19 my last ER even my friend who took me was very scared. I found a really good article in a Michigan MG chapter newsletter from 2017 on BIPAP. It explained things about CPAP- BIPAP Had not read before. And I read a lot / research a lot especially on my breathing. I don’t have sleep Apnea. Mayo has looked at that. I have paralysis in my diaphragm Mayo found in 2008. The last pulmonologist at Mayo said the movement of my broken diaphragm up into lung space more is a big problem. I do have a loyal Pulmonologist locally he was first to send me to neurology for Muscle weakness. Gotta sign off. Had really hard week. Thanks Michigan!! Sculptor 44
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