F.D.A. Approves Drug for Rare Form of A.L.S.
FDA Approves Biogen’s Drug for Rare Form of ALS - The New York Times

Qalsody . . . spinal injection intended to act against the SOD1 genetic flaw . . . the Mother of

Anthony Carbajal,
https://www.instagram.com/carbajalphoto/?hl=en
Anthony Carbajal Documentary: Strongest I'll Ever Be - YouTube
ice bucket challenge star ^

also had the SOD1 variation . . . but managed more than twenty years partially due to pacer intervention . . . .