Newly Joined
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Join Date: Oct 2015
Location: Big "X" Right in the Middle of the US (temp. condition)
Posts: 4
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Newly Joined
Join Date: Oct 2015
Location: Big "X" Right in the Middle of the US (temp. condition)
Posts: 4
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Speaking from the perspective of the sufferer, it is truly unbearable. I have had ATN ("Type 2" / Constant TN / Not from a blood vessel pressing on V3) for nearly 29 years. It has taken everything within my power to not take my life every other day.
At one time I could bury myself in work 20 plus hours a day. The outside (those not in my inner circle) did not need know about the suffering or see my tears. I just had a "migraine" when I spoke to anyone. I feel like I am ripping apart physically and mentally. The right side of my head feels as though is either going to explode, melt off or I am going to pull it off to make it possibly feel better. With every execerbation in pain I have migraines one after the other / cluster headaches. When my old Neuro jokingly said he had a cure that might work, he didn't realize that my lower body would been happy with his "just amputate the head joke."
If that wasn't enough I also have a horrible neck that has been operated on 7 times. The neuropathy in my shoulders, arms and hands is debilitating. Functionally chest up is questionable.
I literally have tried everything in the formulary. I have been to every type of physician. I have been in every type of therapy, both mental and physical. I continue to persue treatment in both avenues to stay alive.
I am currently in pursuit of psychodelic or psychodelic-derived treatments that work differently. I have done high-dose ketamine infusions with some short term success. I have use ketamine troche with some temporary relief and help with depression. My pursuits are deeper and more lasting. Perhaps ketamine coma as a last resort. There are many things in between ... if I can get to them with the help of my excellent care team.
I wish your better half - good day where they can be found. Comfort is hard to find. Sometimes just the ability to let it all out helps the pain.
Dave
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