To answer your question about anyone else with similar issues, yes, I have.

My condition kept getting worse from multiple head bumps and overdoing it, to the point where getting out of bed or reading made me dizzy.

So I basically stopped doing the activities that triggered the dizziness, because getting dizzy made it worse. Unfortunately, that meant lying in bed in a dark room with my eyes closed for 9 months. Then I gradually built myself back up, gently increasing activity, resting 3 days, and repeating.

For example, during the worst of it, I couldn't read at all. Then I tried to read one paragraph of a book and had to rest 3 days to recover. Then another paragraph. Then a page. Then 5 minutes. Etc...

All while eating a healthy diet with fresh ingredients and no processed foods.

Today I'm mostly symptom free and can read all day and go on road trips and concerts.

My case and treatment approach was extreme, but it worked. I don't want to say whether or not you should do what I did, but I'm sharing what I did.

Do you have anyone who can help care for you? So you don't have to do the tasks that make it worse? I had caregivers that helped me.