Quote:
Originally Posted by DrewDigital
To answer your question about anyone else with similar issues, yes, I have.
My condition kept getting worse from multiple head bumps and overdoing it, to the point where getting out of bed or reading made me dizzy.
So I basically stopped doing the activities that triggered the dizziness, because getting dizzy made it worse. Unfortunately, that meant lying in bed in a dark room with my eyes closed for 9 months. Then I gradually built myself back up, gently increasing activity, resting 3 days, and repeating.
For example, during the worst of it, I couldn't read at all. Then I tried to read one paragraph of a book and had to rest 3 days to recover. Then another paragraph. Then a page. Then 5 minutes. Etc...
All while eating a healthy diet with fresh ingredients and no processed foods.
Today I'm mostly symptom free and can read all day and go on road trips and concerts.
My case and treatment approach was extreme, but it worked. I don't want to say whether or not you should do what I did, but I'm sharing what I did.
Do you have anyone who can help care for you? So you don't have to do the tasks that make it worse? I had caregivers that helped me.
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It's tough right now as I'm still employed somehow. Made my sales number last 5 years so think they're probably worried about firing someone cause of disability.
I will say my mental health is really bad right now to where some days I'm suicidal. This has led to me staying with my mom instead of my two kids and wife who may now be leaving me.
I dont have a diagnosed concussion so my family thinks this is more a mental health problem. As opposed to rest they're trying to encourage me to get out and do more.
Testing has shown I have saccades to reveal vestibular issues and convergence insufficiency. Potential migraine or vestibular migraine. Really don't have what i would consider balance issues but just cant tolerate the motion on screens or lately the motion of me walking or being in a car. I did have a concussion a number of years ago and it resolved in a couple months. These symptoms have all felt similar.
Thank you for sharing your story and you're a jedi for your recovery man. I can tell you this, if i could make a deal and stay in a dark room for 9 months and guarantee i could recover as well as you Id sign up today.
I hear you on the antidepressants and I really struggle to tolerate them. I did one last year for a couple months and it was hell but in hindsight am wondering if they calmed my brain and reduced some symptoms a little so that's why I'm considering. Id much prefer 5-HTP but it makes me dizzy.
Last thing I'll mention is I am able to handle 20 minutes on a Peloton now. At the start of all this I got pressure in my head when exercising so couldn't but slowly built it up again. Sadly it doesn't reduce any of my symptoms but at least helps me a little mentally.
Let me know if you have any additional thoughts and thank you!