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Old 10-16-2023, 12:38 PM
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Lara Lara is offline
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Join Date: Sep 2006
Location: Far North Queensland
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Lara Lara is offline
Legendary
Lara's Avatar
 
Join Date: Sep 2006
Location: Far North Queensland
Posts: 10,994
15 yr Member
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Quote:
Originally Posted by RationalBeing View Post
Lara, fantastic information. I've been taking Alpha Lipoic acid and Acytl-L-Carnitine as well as Vitamin D, NAC and just a general B-complex from costco since nearly the beginning. Maybe they have slowed the progression somewhat. I am going to try high dose thiamine starting today.
Just be careful with the amount of B6 in the B Complex. Some people on this forum have written about having increase in neuropathy symptoms on higher doses of B6. Do get your B12 checked though.

Having numbness like that all over certainly must be very disturbing for you. my daughter had post viral syndrome as they called it here (ME/CFS) after Epstein Barr Virus. Affected her life greatly for many, many years and still a little to this day. She had parasthesias but not like you describe. They were scattered in different places on her body, like patches. They resolved thankfully.

I hope you have a very good doctor who can guide you through all this.
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