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Originally Posted by RationalBeing
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As for your daughter - I had Mononucleosis as a child so I do suspect covid may have done something with EBV in me, not sure. How did your daughter cure her ME/CFS? Was it just time? I don't seem to have chronic fatigue, just this entire body neuropathy.
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Well, she's never really fully recovered with the fatigue part but certainly much better over the years. She certainly isn't very resilient either. It changed her. There are a number of people who used to post here a lot with full body neuropathy although not actually caused by Covid like your situation. It obviously has done something to your immune system. I can't figure out why so much money gets spent on certain crappy things yet they can't figure out how to help people with this disease.
I can't imagine how it must feel all over your body. Would be horrific. I felt pretty good yesterday but did over-do it a lot. Today I'm having a huge flare. I get sick of trying to work out what's caused the flare but I should feel good that I'm not too bad compared with so many people.