Quote:
Originally Posted by MuonOne
Ady Barkan, Subject of Documentary ‘Not Going Quietly' and ALS Advocate, Dies at 39
MSN
The median life expectancy of patients prognosed by forty years of age is about 6.5 years, thus Ady's survival was ordinary.
Ady Barkan - Wikipedia
His life was not however.
His website/advocacy center:
Be a Hero Fund |
Ady Barkan, Subject of Documentary 'Not Going Quietly' and ALS Advocate, Dies at 39
MSN
The median life expectancy of patients prognosed by forty years of age is about 6.5 years, thus Ady's survival was ordinary, he deployed a tracheostomy among other medical interventions.
Ady Barkan - Wikipedia
Ady Barkan - Wikipedia
His life was not however.
His website/advocacy center:
Be a Hero Fund
Be a Hero Fund
and a few words from his M.D.
Activist Ady Barkan and Actor Bradley Whitford Work to Reform Health Care
https://tinyurl.com/ABbyMC
His documentary:
Not Going Quietly
Not Going Quietly - Wikipedia
https://tinyurl.com/AdyNGQ
His autobiography: "Eyes to the Wind: A Memoir of Love and Death, Hope and Resistance" (Atria Books, 2019)
These references are a mini bio of ALS patient Ady versus ALS . . . a very extensive non-profit campaign.
My first attempt was very poorly 'translated' from e-mail to bbs format (sorry, I don't know why it gets messed up sometimes).