Hi, I’m a 30 year old woman with a rare neurological disorder. 10 years ago my diagnosis was suspected hereditary spastic paraplegia but now I’m thought to have early onset pls as my symptoms have progressed. I have lost many abilities slowly over the past 10 years and my spasticity has increased immensely over time. I feel very isolated as a young person dealing with illness that generally effects older people and look forward to connecting with other community members.