Welcome, Galaxyofdaisy!
So sorry you have a disorder that brings you here but it might be some comfort to find people who are coping with neurological disorders of one kind and another.
PLS = primary lateral sclerosis? NeuroTalk doesn't have a forum devoted to that rare disorder but you might be able to find some people with it or past posts about it.
For instance, I found these:
https://www.neurotalk.org/search.php?searchid=3633402