Thank you for the warm welcome. I'm glad I found your site. Moyamoya is a very rare neurological brain disease. Moyamoya means "Puff of Smoke" in Japanese. It is basically the narrowing of blood vessels that provide blood to the brain. Unfortunately there is no cure for Moyamoya. The main treatment is brain surgery to restore blood flow to the brain. This is a very misdiagnosed disease. Alot of Neurologists aren't even aware of Moyamoya that is one reason for many being misdiagnosed. Some of the main symptoms are strokes, seizures and headaches. These are also symptoms of many other illnesses. That also contributes to many being misdiagnosed. I have some information on Moyamoya that I will try to post. If anyone has any questions please let me.know. I am a advocate for my Daughter and am trying to raise awareness in hope of one day finding a cure.
Thank you