My heart almost stopped when I read life expectancy 4 years. Thank God I continue reading. Lol. I'm realizing that dwelling on this does not do me any good.
I have excepted that I have this condition and i'm trying to be more upbeat and positive now. One thing that has made a big difference is the gabapentin it has worked well in diminishing the pain in my feet, legs,
hands, forearms. I will be under going more test starting in a couple weeks in hopes of finding the root cause. If I don't find the root cause, I will suck it up and carry on. I just retired and have many things I have planned to do in the future.

Thank you again agate for your wisdom.