Chart
Unofficial Pacer Study Summary Update One - Google Drive
A patient with the medical intervention exceeded 7,000 days this weekend and is the first patient entering the 7000 bracket after initiating the intervention before reaching five years from symptom onset. They were one of the first patients to deploy the intervention. They are in the phenotype group 'limb onset.'

In the sample the chart is based on, there are forty more patients without the intervention than with. My previous chart has about equal number of patients. There are 434 patients in this summary, 197 are known to have tried the intervention. Those who are not known to have tried the intervention have an advantage of at least forty more persons in this chart. There are several patients who are not in this chart.

This would be the facebook page of the first such patient known over 7,000 days, but I do not think the link will work:

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