--in our Rare Disease subforums:

http://neurotalk.psychcentral.com/forumdisplay.php?f=76

From what you describe, this could very well be what's bothering your quadricep/thigh area, although many things can contribute to symptoms in that areas, including lower spine problems, and peripheral neuropathies nto related to compression of the lateral femoral cutaneous nerve.

We never really made a Useful Websites section there, but Jo55's post of informational links is a good place to start.