Hello and welcome
I can't offer any insight on your symptoms, but just a few things you mentioned made me also remember posts that some of our members with Myasthenia Gravis have mentioned as some symptoms? Here is that forum if you want to take a look at the info there.
https://www.neurotalk.org/myasthenia-gravis/
I also copied your post to our New Member Forum, just so it could get more views, and hopefully some helpful responses for you. Here's that link
Could this be Chiari rather than CFS/ME?