(rewritten)

This post is to suggest patients with Amyotrophic Lateral Sclerosis might be able to obtain official copies of the latest journal papers with their insurance company paying for, or reimbursing the costs of such copies. Most of the time, Stand of Care provides patients with an outright cure for whatever medical issue they must deal with. When there is no cure, however, patients are Research Medicine patients rather than Standard of Care patients and can improve their wisdom on medical practices and characteristics of a frontier new for them through review of official journal papers. Meaningful consideration of whether participation in clinical studies and the actual value their participation provides is increased by the improved understanding of the syndrome characteristics (especially at the biological level) and may only be possible through review of official journal papers. Try to get a real hardcopy of papers or journal editions rather than electronic ones because electronic ones are subject to excessive control and can all too easily be modified. After you master them, donate them to hospital or academic libraries and increase the chance academicians and medical staff will read them. There are many recognized medical issues and undoubtedly more awaiting recognition. Since Amyotrophic Lateral Sclerosis is a rare disease most libraries have limited current information regarding ongoing research and the latest achievements. The more wisdom one has regarding their medical situation, the better one can help themselves and the prosperity of research activities, which means decreasing the time remaining until a cure is found. Patients considering participation in a clinical study deserve the latest insights and can better serve research by the improved professionalism such learning can produce.