Oh My! I'm new and was just diagnosed last Tue. (10/22/2024). I am stunned.
For about 8 months, I thought I had an eye problem, so I went to two different eye doctors, told them of my problem, and asked them what I should do, thinking maybe I needed cataract surgery. One of them sent me to an xray office to have a CT scan to see if anything was awry. Nothing was found.

So last Tue. at my regular PCP appt., I told him of my problem, thinking it had something to do with allergies (I take a shot once per week), but he said he didn't think so, and when I explained my problems, he immediately told me it was my trigeminal nerve. Finally, someone knew what I had! I had never heard of tic douloureux. I began to search all over the internet to find out more info and the more I looked, the more concerned I became. For life? more pain? What did I do to deserve this? Only about 180,000 in the US? Why was I chosen?

I would appreciate any positive advice anyone can give. I am now looking for a specialist in my hometown, and hopefully one that is experienced. Being in my mid 80's, this was not good news at all.

Good luck to all
blessings
J. P.