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Old 03-20-2025, 11:36 AM
richey.hayleyrose richey.hayleyrose is offline
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Join Date: Mar 2025
Location: PA
Posts: 2
richey.hayleyrose richey.hayleyrose is offline
Newly Joined
 
Join Date: Mar 2025
Location: PA
Posts: 2
Confused TOS/Subclavian Steal/Who Knows

So a while ago I went to the doc and explained my symptoms of raising my left arm and my vision going black and getting dizzy, fainting, the pain from the back of my arm to my fingers and the numbness and tingling and extreme cold. No discoloration. Went to cardiologist for POTS. Nope. I went for a TOS test with PPG and it showed flatline when I raise my arm, so no blood flow to my fingers. Went for a CT scan, no compression shown. Vascular surgery cancelled my appointment. Went for an EMG which was normal. Went for an ultrasound Doppler thing with duplex and it showed high PSV in my proximal subclavian artery and low PSV in my distal radial artery. Went back to the doc and was sent to Ortho to check for brachial plexopathy and Vascular to check for subclavian steal syndrome. Ortho did X-rays this morning and saw I have cervical something where my neck is completely straight. It only bothers me when I look up for extended periods of time but no other neck issues. He ordered an MRI that I have next week because he said I had a positive elbow flexion test and positive adsons test and everything aligns with TOS and usually it’s physical therapy but my other symptoms are not aligning so they want imaging of the whole thing. The vascular doc I was scheduled with for Monday was then changed to another doc that specializes in venous after the MRI because the doc I was scheduled with specialized in arterial like TOS and she’s not seeing TOS. Gabapentin does nothing so we ruled out nerves. The low PSV and positive adsons test, according to my doc, points to an issue with my radial artery but everyone is tossing me around and one doc says TOS but the other says no and I just can’t get a diagnosis of anything but it’s getting worse. I dropped my coffee cup the other morning because my arm and hand went completely numb and that’s never happened. The pain is also getting worse no matter what position I’m in.
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