Daniella, I've been in this community for years now, and even now, I can't say I've had ALL the tests, because medical knowledge is always growing.

I have some standard, Liza Jane advice for you: Collect all your records. Have every doctor you've seen fax "every test" was done. As for your doctor being so sure he's ruled out Charcot Marie Tooth, I'd want to know just how he did this. There are a multitude of genetic tests for it, and I wonder which he did.

You wonder if both sides are involved. But you also wrote this:

"Nerve conduction studies were obtained following posterior tibial motor,peroneal motor and sural sensory nerve stimulation. There were prolongation of the distal latency of the right peroneal and bilateral conduction velocity slowing 22.8 meters per second right,35.9 left. Sural latencies were intact following right sided stimulation,boderline latency on left with conduction velocity slowing 35.2 meters per second. This was an abnormal study consistent with a bilateral sensory motor neuropathy."

According to what you've written, you have bilateral disease.

What catheter are you talking about? I don't know of any tests requiring a catheter and I'd be interested to hear.

Please go to lizajane.org and download the test lists. Bring it with you to your doctor and ask if you have had all the tests.

It does not sound like a small fiber neuropathy, however, it sounds like a large fiber, post-ganlionic type thing, (the conductions were slowed from your knee to your spinal cord), and those are often immune. So you ought to get all those antibody tests, and maybe a spinal tap. (Ask Melody about that!)