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Old 07-31-2007, 07:36 AM
daniella daniella is offline
Magnate
 
Join Date: May 2007
Posts: 2,998
15 yr Member
daniella daniella is offline
Magnate
 
Join Date: May 2007
Posts: 2,998
15 yr Member
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Thank you. Trust me I have learned so much from you all. The last apt I was at after the doc I told not to touch me and did I thought of all of you. I didn't allow it. I have asked and they said pn is usually in both but worse in another. Also it will feel like I'm doing damage or it won't move but it will. Lizzajane I'm sure I haven't had every test but all the docs I have seen feel the ones I need and I have asked for extra which they did do. The catheter is actually a tunneled epidural catheter and its just for pain relief so I can do a very extreme pt. Like many said they don't want it to athrophe. I have been pushing and now am out of bed full days most days. Even through the severe pain. I don't want to go backwards but now with both legs its a real challenge and the come and go neck/dizzy. I have all my records which I just sent to u of m now hospital pain clinic/anasteseogist to see if they have something other then the catheter though I may wait to go to this apt. As for that disease I think it was through the extensive blood work but I did not have a spinal tap. I think since all my mris didn't show anything from the spine that may have been why and no other symptoms of that disease. I could be wrong but one of the neuros thought it may have been an auto ammune issue so did a few extensive tests and sent me to the endocronolgist.Could you tell me why they want to treat it like RSD? Dahlek thanks I do want to learn but a lot of what is going on with me they have no answer which I know some can relate to. Also that I'm willing to push but also I see that they will push to far and even the doc said we want to see how far you can. The issue is the pain is not only that day but days after. Shiney Sue your so sweet and I like all of you more then most of my family. Your like my adopted family. Its funny how people who suffer have such a special heart. As I move more I remind myself it has to hurt like when you see others on tv in rehab you can see the pain in there face but in the long run makes it better. I'm sorry for all your suffering too. Thank you times a billion for all your support.
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