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Member
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Join Date: Aug 2006
Location: Brooklyn, NY
Posts: 805
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Member
Join Date: Aug 2006
Location: Brooklyn, NY
Posts: 805
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Daniella
Call your doctors and get the results of your lab tests. You very well might have something immune going on, and it's important to know they'v done all the right antibody tests.
And if nothing has been found, a spinal tap might show an elevated protein, which is a sign of immune disease.
You need a diagnosis more than an intervention for pain. Get up, walk, move around, don't let yourself atrophy, but also, advocate for yourself and keep copies of your labs.
You need to be the one in charge of knowing when enough testing is done.
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LizaJane
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--- LYME neuropathy diagnosed in 2009; considered "idiopathic" neuropathy 1996 - 2009
---s/p laminectomy and fusion L3/4/5 Feb 2006 for a synovial spinal cyst
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