Roxie:

Here's exactly what you should do (because I had to do it myself).

When my son was diagnsed with Aspergers, I simply looked it up on the internet, printed out a few flyers with the explanation on it, and when family members would say "What the heck is Aspergers Disorder?" I would hand them the piece of paper. They would read it and they would go "Oh, that's what it is".

Now I read in your signature that you have Chronic Anoxonal Neuropathy and Myopathy. I tried googling this to get a simple explanation and what came up was only stuff a doctor could interpret.

So if anyone on these boards can write you up a simple layman's explanation of Chronic Anoxal Neuropathy, then you can run it off on your computer (make a few copies). Keep these copies in your purse.

When you feel the need to share what you have with whomever you need to share this with, simply whip it out of your purse and simply state "this is what I have, I hope you can be understanding of what I'm going though".

Hopefully it will stop them dead in their tracks.

Hope this suggestion helps you.

Sincerely,

Melody