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Junior Member
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Join Date: Oct 2006
Location: So. Calif.
Posts: 11
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Junior Member
Join Date: Oct 2006
Location: So. Calif.
Posts: 11
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At this point in time, Tysabri is recommended for people who have failed at other proven and SAFER therapies. I am reluctantly impressed by it's track record (over this last year), but I think it is premature and irresponsible to recommend such a treatment to people who are new to treatment options.
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I believe that it is highly reckless and irresponsible to promote incorrect information Re: Tysabri, as the correct recommendation for Tysabri by the FDA is: "it is generally recommended for patients who have had an inadequate response to, or cannot tolerate, any of the other disease-modifying therapies". http://www.nationalmssociety.org/sit...ds_natalizumab
Also, Tysabri is being prescribed as a first line and/or second line defense against MS.
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Our Neuro's have biases, that are NOT necessarily based on anything concrete. All of the CRABs have equal efficacy
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Again, this is incorrect as Tysabri and the ABCRs differ substantially in efficacy. See the proven data: "The relapse reduction rates used were: TYSABRI was 67%, Avonex (Interferon beta-1a IM) 32%, Betaseron(R) (Interferon beta-1b) 34%, Copaxone(R) (glatiramer acetate) 29%, and Rebif(R) (Interferon beta-1a SC) 32%."
TYSABRIŽ Shows Reduction in Steroid Use/Hospitalizations & ABCR Comparison
http://http://www.elan.com/News/full.asp?ID=913012
Considering that there are over 14,000 MS patients currently on Tysabri therapy, with 300 patients being added weekly (with some of us receiving outstanding results), there is a distinct possibility that their neurologists believe the proven data on Tysabri (including the submitted three-year safety data), and not the inaccurate postings of same on a message board.
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I'd certainly recommend giving that [LDN] a go before trying Tysabri
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Bethany, FYI... LDN is not an FDA approved drug for MS and it requires a prescription that needs to be filled at a "compound" pharmacy. Therefore it is my suggestion that you discuss your options for effectively treating your active MS with your treating MS doctor.
Whatever your decision, I wish you only the best and a speedy recovery from your current symptomatology.
Have a great week everyone.
Lauren 
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Our todays are only stepping stones for our tomorrows. :
Please feel free to visit my blog: Living with MS (My Tysabri Diary)
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I'd love to hear from you!
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