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Old 08-02-2007, 07:35 AM
kk13 kk13 is offline
Junior Member
 
Join Date: Jan 2007
Posts: 75
15 yr Member
kk13 kk13 is offline
Junior Member
 
Join Date: Jan 2007
Posts: 75
15 yr Member
Default Neupro Patch

I'm probably not representative of the typical Parkinson's patient, so I don't know how helpful this will be. I'm a young "old-timer" to PD. I had my first symptoms 20 years ago at 30 years old, and was finally correctly diagnosed in 1990. (For the mathematically challenged, I'm now 50). I am disabled, but manage to piece together a few functional hours in a 24 hour period: 20 minutes here, an hour there. No picnic, but I am grateful for any 'up' time and any improvement.

In addition to a long list of other med's, I started the patch about 3 weeks ago at 2mg, and increased to 4mg a few days ago. So far, the effects have been less than anticipated. (But remember, I'm an "old-timer" to PD, am on the patch a relatively short time, and am on a relatively low dose. While the publicized max is 6mgs, under certain circumstances, we can go much higher). My neurologist is a MDS in NYC with a "high-shelf" reputation and recommendations.

Back to my experience with the patch. The "dyskinesias" and "off time" are actually more severe, but seem to be of shorter duration. Also, there has been no great improvement in the sleep department. On the bright side, I have noticed in just the last few days that each day is a little bit better than the day before, so maybe....

Sorry that's all I can report for now, but the Dyskinesia Monster just struck so my typing ability is almost shot! Will keep you posted in the days ahead.
Keep the faith!
Keith
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