Hi Trent Glad to see you made it over here.

There are a great group of very helpful and knowledgable members here on NeuroTalk's Epilepsy & Seizure Disorders Forum.

I dont know much about this as my own son, as you may have read on the other forum, has Tourette Syndrome. But I do recall, in the early days after his diagnosis, that an Occupational Therapist working at the school had noted he had "seizures" during a therapy session for his Sensory Integration Dysfunction, and I had to ensure that his chart was corrected after I had spoken with her. Sge did not recognise TS tics as she had not worked with a TS patient before. So she just wrote down "seizures"
I therefore know how people who dont understand tics can sometimes mistake them for seizure activity.

Still, you are getting this mixed set of diagnostic messages from professional doctors, and so I really personally feel that second third and even more qualified opinions, after careful testing and evaluations, are needed.

Have you ever seen a developmental pediatrician. the one we saw was the first doc in a string who correctly diagnosed the TS/OCD/ADD (no Hyperactivity) etc that my son has

We had the same experience getting the dx for his Crohn's disease in the early days ..........a lot of misdx till a savvy GI specialist got the colonoscopy results and dx Crohn's

so dont give up hope for clarity...I know it is hard....but you will hopefully find a clued up Doc, or (blessing!) one that is willing to go do research or consult with others and help!!

I hope to see you here and at Latitudes too if needed



Cheri