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Old 08-03-2007, 08:32 AM
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rumpled rumpled is offline
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Join Date: Jun 2007
Location: NJ
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rumpled rumpled is offline
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rumpled's Avatar
 
Join Date: Jun 2007
Location: NJ
Posts: 228
15 yr Member
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I take it with food or milk as it upsets my stomach as well. Unfortunately with no adrenals, vomiting is a bad situiation with me and can lead to a medical emergency so trying to avoid it.

Since I have tried the mestinon I look like a raccoon with dark circles under my eyes.
I think I am going to report that it is not making a difference. I wonder if that means he will try me on something else. I don't see the other doc until the end of September.
Question for Lois or others - do you have fatigue normally and the med takes it away somewhat? I have wasted muscles and then when I do anything, I just go downhill from there. The mestinon does not allow me to recover so it sounds like it is not working for me. My face and breathing are so far fine. Arms and legs get weak with use and then do not recover for days.
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Cyclical Pituitary Cushing's, Addison's via bilateral adrenalectomy, Growth Hormone Deficent, Migraines, Trigeminal Neuralgia, Hashimoto's, Hypothyroid, Myasthenia Gravis?
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