Thanks so much!!

You guys have been the best...

With my limited to NO knowledge on any of possible therapies, I'm pretty lost. But feeling more a bit confident.

Another random question...
relapse? exacerbation?
is there a difference? how do you know when you're there?

my situation has been the same, or occasionally worse on the rebif, since last September.

I guess part of my challenge is that I don't know what to ask, what language to use or how to follow up the responses to get the BEST info...

most of what I find is patronizing (poor you... your life isn't really over ), WAY to medical & technical (I'm not really sure it's English!) or written by the drug peddlers (screw the options-- give ME your $$$!!)

I'm slowly putting together my usable, non-partisan info, but it's rough. I feel like I'm losing time... as if I'll find the right questions to ask after it's too late...

Like Monday I called and said I *think* this new headache *might* be optic neuritis... left the message w/the secretary... he called back Tuesday to ask IF i was still on the rebif. Then said to just take 2 motrin w/ the rebif and make sure I came in for my next appt 8/20.

I'm feeling a bit frustrated & disconnected... and this is neuro #2 since March (not counting the 2nd opinion visit to Hopkins)....
I feel like I'm whining and I'm so NOT this down, dejected type person!!!

UGH!!

Bethany