Hi Roxie,

I applied for SSI in November 27, 2006 and was approved in Feb of 2007. This disease is on the list which you can get on the Social Security web site. I did my application on -line and brought all my paperwork to the local office. I didn't have to wait 2 years nor did I have to have any other testing done by the SSI office. I did however have all of my doctors visits and test result copied so that I had all the information on hand when I applied. I'm not sure why you wouldn't also just apply for FMLA leave at the school. This also allows for up to 13 weeks of time off or you may use days or partial days as needed. You can check with you HR director at the school. Good luck and I do agree no one understands this disease so its very hard to make them understand just how painful it it.