Hi Lois, how long have you been taking mestinon for?? Ive been on it for nearly 5 years, as well as prednisilone and azathioprine, and I still have my occasional "toxic" times, every few months I have a few days of nausea, and sometimes vomiting if I dont start the probanthane quick enough, and running to the toilet very quickly. I try and look on the bright side and hope one day I may be off a few medications!!
Rumpled, I do hope your doctors come up with an answer. Yes my medication (mestinon) does help with my fatigued muscles, although it doesnt bring them back to "normal", just to mg normal. I am finding typing hard at the moment, so Ive just taken a mestinon, and hopefully my fingers wont be so slow soon, hope this helps.