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Old 08-04-2007, 02:03 PM
mainiac mainiac is offline
Junior Member
 
Join Date: May 2007
Location: Maine
Posts: 16
15 yr Member
mainiac mainiac is offline
Junior Member
 
Join Date: May 2007
Location: Maine
Posts: 16
15 yr Member
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Quote:
Originally Posted by Goodn'Plenty View Post
the best and only way to responsibly approach this illness.(no ice)
I agree 100%

Quote:
Originally Posted by Goodn'Plenty
I am really sorry about what happened to you maniac but you didn't know
Thanks, Goodn'Plenty, I appreciate your hug, I'm in a flare and really needed the "cyber hug"! There's one right back, lol.

Quote:
Originally Posted by Goodn'Plenty
That is a whole other area with the problem of RSD that we must consider. So many that are diagnosed have no idea what is going on.It is certainly not your fault that there is so little information out there. You did what would naturally feel good on something that feels so hot!!!! Your natural instinct took over - to relieve the hot pain and until we can get the correct information out there many more will repeat your mistake .Very sad
It is sad, and I try to do all I can to warn others of the dangers of ice. To me, I consider it to be like telling your child it's okay to take a radio with them to take a bath. You may have done it before with no bad results. You can't guarantee they will be electrocuted, but you certainly would do anything you could to stop it. We have had many "ice" discussions on my forum, and most of my members who have used it have had similar reactions as mine, so I know I'm not the only one who has been harmed by it.

Quote:
Originally Posted by Goodn'Plenty
It has been much harder of late but off to the gym I go ( once this ketamine trial is over) as I am determined to keep this body somewhat limber and fit.
You are having Ketamine? Very glad to hear it!! I do hear about these treatments first-hand from some of my members, but it is not in my future, that I can see. ($$ issue) I hear such great results from this treatment. I am so happy to hear of anyone getting it, as Ketamine treatments holds such promise to us RSD'ers. GOOD FOR YOU! (if I could jump up and down for you, I would!)
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