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Member
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Join Date: Apr 2007
Location: Tampa Bay Region, Florida
Posts: 456
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Member
Join Date: Apr 2007
Location: Tampa Bay Region, Florida
Posts: 456
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Nice to know you've been confirmed but ...
I know I hadn't been on the forums much, as I've
been pretty busy lately. With Level 4, being evaluated
and then comes the felon who flees from a Deputy
and plows into a Lady's car, and then flees again and
plows (and destroys) my car which injured my son and
I. Unfortunately, which caused me not only to loose a
precious Top Notch Epi I had only seen 1 month, but
also my Driver's License, and a heck a lot more.
With the neck and back injuries and no vehicle, how the
heck do they expect my son and I to receive treatment
from Physicians? It had been extremely difficult recovery
time, fortunately we used the monies to purchase bicycles
as a method of transportation (buses & taxi services here
are a joke and cost a fortune).
While I already knew I suffered from Tonic Clonic (Grand
Mal), Complex Partial, Absence (Petit Mal), Gelastic, and
Nocturnal - from Neurologists that had diagnosed it before.
Level 4 Epi changed the Complex Partial to Intractable
Complex Partial and added Electrographic Seizures to the
list. I knew about the electrographic seizures, it had been
discussed to me before by my Neuros, but it was sporadic.
But to have a Level 4 Epi to confirm it isn't good.
That's 2 Epileptologists that have disclosed electrographic
seizures on their documentations and it's always when I'm
asleep. But neither Epi makes note of any Nocturnal(?).
The Sleep Apenea had already been tested for several times
and had been ruled out in the past.
I'm somewhat sad having to loose a great Epi like this,
but communication is very difficult (because I'm deaf even
though I talk, but very dysarthric).
This wonderful Epi & his P.A. do not deny the fact I have
Epilepsy at all; I have no hard feelings whatsoever, but
I can understand at the same time why they had to let
me go, due to the Police Pursuit - as most likely they do
not want any involvement. However, there are no lawyers,
no lawsuits, no nothing, and the Felon still is in jail, and
most likely will be in jail for a long time (with all those
charges he's racked up).
But at the same time I have mixed feelings within, is it
fair for the patient? Things were going so well until that
day the Felon came along and screwed it all up.
With all honesty, there is no Epi better than HE is, he's
the best there is in the United States, and he's the one
who specializes in what I need the most.
I feel like I got the short end of the stick.
When my Primary Doctor assured me he was the best,
my hopes soared, because I was looking forward to being
normal or close to it. I wanted to get out of being homebound
and get to work, and stop bouncing around from job to job
without some type of provocation either seizure or migraine
or both - migralepsy. All of this just was a crushing blow
to me and now - I have really no one else to turn to,
except my Old Neuro which isn't going to be the same.
They already cut back on my med that Level 4 Epi had
set me up on that was working. And his Med Assistant
had instructed me that the Epi ordered me to stay on it.
It's going to be really frustrating for me.
Life is cruel!
I hate Epilepsy!
I hate being Deaf!
__________________
Sharon
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" Vujà Dé - The feeling you've
never been in here before!"
Daily Feedbag of Zonegran, Clonazepam, and Folic Acid
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