I am in this study as a legacy of the PRECEPT (CEP1347) study. In PRECEPT there was a trial within a trial to scan brains using SPECT and BETA-CIT every 2 years in order to prove this method can diagnose PD. So for PRECEPT I had 2 scans done - one in 2003 and a second in 2005.

The study folks are still following me and others to prove they can document the progression of PD using these scans. (I'm sure it has a new study name - on the informed consent document in my file drawer somewhere...)

Anyway, it's now 2007 -- 2 years after my last scan in 2005, and I expect to return in 2009 for another one. No idea when it will end (when will they apply for FDA approval?)

BUT this is the way all trials should treat their participants: make and pay in advance for all travel arrangements for the participant AND a caretaker: plane, train, hotel, meals all paid for in advance by the study. Other than my ride to and from the Phoenix airport, it's all paid for - nothing for me to take care of. (and they will reimburse my costs to and from the airport from my home)

Plus the folks at the IND treat you like royalty - they couldn't be nicer or more caring. No wonder we all like going there! I'll enjoy this trial however long it lasts!