Hi Judy, I think you know my story by now, but let's see if I can beef
it up a little..
My road to the WC began, for me, at age 24, when I had numbness
and tingling of my head. That eventially went away and then in my
late 20s, I had numbness and tingling of my arms and hands.
I noticed it mostly after drinking....and, so, I quit drinking for awhile.
That seemed to help but it came back and then went away again....
off and on...I didn't see a Doc about it. It was bothersome, but
not debilitating.
Then, when I was about 34, I began, what now know, was my first
exacerbation. I suddenly couldn't walk. I wobbled very badly....
looked like a staggering drunk. I went to see my PCP and he
suspected MS, right away, but treated me for Periferal Neuritis,
with oral steroids (prednizone).
I only got worse, so he sent me to a Neurologist and the Neuro
put me in the hospital for tests. My final test, a Myliogram, showed
positive for demylination, so Neuro DX me with MS, at age 36.
I then went into a glorious remission for 17 years.
I was able to
lead a pretty normal life, enjoying my marriage, helping to raise
two SSons and our DD, who was 6 when I was DXed.
Then, the year my DD graduated from college and moved to Cincy
for a new job....and, my Mom got a DX of lung Cancer....(see the STRESS?),
I relapsed and went into a doozy of an exacerbation...I was 52
and my glorious remission was over. I went into the hospital for a
5 day steroid treatment and then rehab. Eventially, I made an,
almost, full recovery.
At that time, I used a cane occasionally, but then, I had more
exacerbations and things got progressively worse. I was on
Avonex and then Copaxone,to no avail.
I went from a cane
to a walker to a scooter and am still using a scooter in and out
of the house. I progressed to SPMS and then discovered LDN, four
years ago, at 63.
Here I am, at 67, none the worse for wear, and plugging along
in my scooter with an occassional walk with my walker.
Like
you Judy, I wish I had discovered LDN, before reaching SPMS, but
at least, I'm staying pretty stable, except for age..
That's my story and I'm sticking to it..
