crossed for intermittent periods about all of it all!
I think you did well asking not demanding some accomodations at work and that things can happen for the good of all.
I don't think that there is a person here who doesn't understand the absolute NEED for good insurance and how we could not even at times, HOPE without it!
I do think your doc is taking a good cautious approach to the IVIG. Sometimes it 'kicks in' right away [my case], others it takes a few times [most folks I've met personally who have reactions and are still on it say the s/e's are WORTH IT] to take effect. Maybe getting the infusions scheduled and doses 'adjusted' at the right times [such as getting infusions on late Thursdays or early Fridays and taking Fri off] might do the trick? I do know that my infusion nurse comes early in the mornings [VERY EARLY] and once the Benedryl wears off, I've half a day left to DO things! IF I get anything achy or flu-like, it's a couple of days later and I find keeping a low very low life profile helps keep things from getting worse. Eating light, salads, fruits and soups a couple of days before as well as extra water helps things along. Essentially the tamer the better?
I hope this helps you get thru your next round and then the one after and it all gets easier! Hugs and hope to you! - j

PS I found that any reactions I had were directly related to how FAST the dose was put in...Ask your doc or the nurse next time about when and how the rates are 'upped'! I can go up quickly to my 220 rate, but if they go up slow and do that last at a higher rate - i get some solid headaches! As much as I love my IV nurse and my IVIG...I simply want it DONE as safely and quickly as possible? Safely is more important than quickly...but this is up to each of us and our sensitivities and sensibilities. There is an ART applied here and we all have to learn what works.