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Member
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Join Date: Jun 2007
Location: Houston, TX. Orig.from Lincoln, NE.
Posts: 517
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Member
Join Date: Jun 2007
Location: Houston, TX. Orig.from Lincoln, NE.
Posts: 517
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HI All!
J, I think my nurse has my IV going in slowly.....it takes 4-4 1/2 hrs for one infusion. I think I get 800cc's......does that sound right? It comes in 4 bottles and she puts those 4 bottles into the IV bag. But I will ask her how slow it is and if it should go in more slowly. It would be worth an extra hr if I didn't have such rotten side effects. My side effects start later in the evening after having the infusion and then last for 2 days after.
Mel, You're right......I did get the bonus with the IVIG with it giving me some time with out pain! I'll put up the side effects for that!
Rafi, Hopefully we'll get good results from my Principal. Mike sent him a great letter this afternoon thanking him for his time and any help he can give us so we have a win/win solution. We SO appreciate all your help!!
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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