Hi Andy,
I had some of the old symptoms, which made me think it was the cyst again.
But after having an MRI, I was told that the cyst hadn't regrown, although there is still some space where the cyst originally was. I asked about it, and was told that it takes a long time for the brain to move back into that space.
I was told back when I had the operation, that cyst fenestration was the best way, but I guess that depends on the surgeon operating. My neurosurgeon told me he made the hole quite big so it wouldn't grow back.
At the time, I never really understood what it was all about, and what was to be done, but when I got the internet a few years later, and more recently when symptoms started again, I have done a lot of reserch on the subject.
I have tried a few different meds for the occipital neuralgia, but they all had a lot of side-effects. Next week, I am going back for a nerve block. Hope that works.
As for how the neuralgia developed years later...no one is quite sure, but when I mentioned that I had been on Anti-depressants for over 2 years then stopped them, and the headaches started after that...the neurologist thought that it may be the cause! Seems strange, but I guess anything that messes with the brain, can possibly cause problems later.
~Jaime~
Quote:
Originally Posted by Andy B
Hi Jamie...
I got excited when I saw your original post.
At last I found someone else that has it...
My neurosurgeon said I am patient number 3 with this for his career.
I was lucky to find him right off the bat..
It's been a little over two weeks, and so far no great improvements.
I still start tipping over, and that echo in my ear, but it changes
from an echo to an almost constant whooshing noise... could be improvement..
I'll be optimistic.. My right side weakness and the tingling in my fingers did
go away.. so that's a plus.. time will tell...
I'm sorry to hear about your headaches.. That really sucks..
It seems like an awfully long time for this to crop up on you
after the surgery.. Are all the old symptoms coming back too?
My Neurosurgeon specifically ruled out the cyst fenestration for almost specifically your problem. He told me that sometime they close up on there
own and you have to redo the whole procedure.
What is your doctor planning? Drugs I assume.......
Did he compare your original MRI with the new one?
Andy
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