but I have been up and down the synthroid scales! In 'hindsight' that my thyroid acted up less than 6 months after my Neuropathy hospitalized me [altho shortly] It had taken a year to diagnose that the PN was auto-immune. Now 3+ years later finding that my 'scarred' thyroid from films and biopsy taken 10 years ago [these records were almost destroyed-I found that out when getting films for other issues 3 years ago & I rescued them!] really showed signs of damage. So that 'flare-up' right after PN onset.. I really wonder about - basic t-3&4 tests were taken, no Auto-I tests as I'd not yet been diagnosed in that quarter - since that 3yr old flare of the thyroid the synthroid was upped a good deal, tho not to the top of the scale..That no one thought to check the auto-immune aspects of the thyroid until a few months ago, well I do WONDER! Ironically, I seem to recall that no Auto-I thyroid tests were done for the immune tests that were done to diagnose my auto-immune-nesses. Drat it! I would dearly love some connections and one BIG AAH-HA Moment!?

Since I am and have been on IVIG for a couple of years plus now, the Thyroid immune #'s while high [upper hundreds, but not the thousands I've read about] are not NEAR what others have reported elsewhere. I suppose that should be a relief or that either real numbers are masked or infections are under 'control' from the therapy or meds.

I guess, that maybe, maybe? Your new doc wants to lower the dose to 'see what happens'? If so, I can sort of understand it...but YOU are the one who's gotta LIVE with IT! So, I would ask the questions, state your strong reservations [much more thoroughly, based on past experiences] And essentiall 'SELL' your views and see if you both can come to some sort of compromise? A GOOD conservative doc usually wants to 'test again' by his/her own standards and SEE what's what. Beating heads usually doesn't work? Asking, informing/fleshing out your 'past' so to speak then working out a compromise that satisfies you and he/she would probably be a way of opening doors to info about what can and doesn't work for some thyroid folks.

I give you snippets of my own history for you to know that we all are different, the road to thyroid issues is well 'muzzy' and overlaps with a lot of other stuff going on in US. We do have to listen and learn about ourselves and advocate FOR ourselves with what knowledge we can sift thru on the 'net. No we did NOT go thru medical school...Nor do I, possibly you wish to as well. But, constantly reminding the docs that YOU happen to be the ONE that happens to be attached to THIS problem. Well, that gentle reminder seems to get docs to know I am seriouosly unhappy about the 'attachment'! Keeping cool, factual and detached about those pesky 'objective' symptoms. Trying to do the same about the 'subjective' aspects as well...running down the 'lists', is the best way I've found to get a doc to want to work FOR and WITH me on this all.

Docs ask you: How are you doing? - Reply: Ok, considering [To self - feel like a pile of semi-dehydrated cow poo? Why'd you ask silly person?] Where's all that education? DUH!

's good person....and Good Luck? Sounds like you are going to need it? Wish I could offer more...I am not familiar with how Canada's systems work. I feel as if I'm still learning how to use my own insurance system to advantage. Keep me/us up to date! - j