Quote:
Originally Posted by HeyJoe
Rina it doesnt sound like you have had any tests for small fiber neuropathy which would not show up on an emg/ncs. Tests for small fiber neuropathy include: sweat test, quantitave sensory testing and skin punch biopsy which actually counts your small fiber nerves and looks at their condition.
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In addtion to what I have mentioned above - I did QST (quantitative sensory testing) - which come out clear, CT and MRI of the brain - which also come out clear. My neurologist doesn't think that I have to do the skin biopsy right now, no one has mantioned the sweat test. So, I think as someone wrote that guess is the name of the game and maybe they are waiting to some proceeding or recovery. That's why I'm so interesting on how long it took you to be diagnosed. and since there is nothing to do - no one of the medical care really care about me. We have here a very good doctors, but they are still humen beings ....