Thread: how long
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Old 08-12-2007, 01:44 PM
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Roxie2007 Roxie2007 is offline
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Join Date: Jun 2007
Location: Houston, TX. Orig.from Lincoln, NE.
Posts: 517
15 yr Member
Roxie2007 Roxie2007 is offline
Member
Roxie2007's Avatar
 
Join Date: Jun 2007
Location: Houston, TX. Orig.from Lincoln, NE.
Posts: 517
15 yr Member
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HI Rina!
My first memories of my Neuropathy was achy arms, shoulders hands and legs....and an over all feeling of tired/weakness. I think I had this for almost a year prior to my first dr. appt for the pain.....which was in Feb. this year. My dr. thought I was just depressed and put me on Cymbalta....which really hurt my stomach because I have Barrett's Esophagus. My next step was the best step I've taken....I saw a Rheumatologist. He started doing all kinds of tests and blood workups. I had CT scans, MRI's of every part of my body and brain and a nerve conduction test. Everything looked ok......except for some Arthritis. Finally he scheduled a nerve/muscle biopsy and that showed that I have Chronic Axonal Neuropathy. I've been on a roller coaster since trying pain medication. I tolerate Lyrica well.....but it's worse side effect is rapid weight gain.....which I hate! So I've been trying other pain meds and now I'm on Balacet 325 and Hyrodrocodone. I'm also having IVIG infusions. I just had my 5th last week and they are starting to help a little. They are VERY expsensive and I'm lucky that my insurance is covering them.
I hope you get your Neuropathy figured out Rina soon! It's sure not fun not knowing what your problem is and knowing you are in pain in the mean time!
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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