There are four basic types of neuropathies...in the simplist forms they are: Ideopathic [unknown/not a clue] Immune, Toxic and Traumatic. I'm gonna guess you fall the the last category? While the trauma isn't pain from severed nerves resulting from a car crash or a fall down a flight of stairs or the like...you've probably had some nerves damaged or destroyed from your surgeries? Well, how and who is gonna determine this? Someone from the same practice? I'm gonna bet IF you can find copies of the papers you'd signed for those foot surgeries...you probably signed your life away in terms of getting any 'satisfaction' from that quarter.
While I got very lucky and actually got a 'diagnosis'...treatment of that and other overlapping issues is still TREAT THE SYMPTOMS...Many nerves can still regrow and reprogram to work better than not having any nerves at all. Just keep in mind that a zillion miles of nerves can DIE in minutes! They re-grow about a 'centimeter' - a quarter of an INCH per month.. They only connect and work right IF we make sure our diets, supplements, and EXERCISE is of the nature to help them grow and work best. The only suggestion I could think of is that you go thru www.LizaJane.org s sheets and see if you have been tested for anything auto-immune...the reason I suggest this is that I too had 'neuropathy' but it kept spreading..It too is almost to my waist. It could be your 'trauma' had triggered some other stuff.....possibly with a cold or flu in-between? to go into some sort of overdrive.
The very, absolute LAST thing you need to be is SCARED! While it's a totally frightening experience to live thru this all...It MUST be your motivation to learn more of what has been tested for you and what yet needs to be done! PUSH for those tests...If your docs won't allow or go for it? Go to the biggest best teaching hospital you can get to and GET SEEN AND TESTED THERE! ASAP![Ask to be put on any cancellation lists to get there] I found that having some big-whig testing and conclusions somehow 'motivated' my own neuros to do what needed to be done.
I hope this helps...I can feel your frustration in your words...Many of us have or are 'there' in different forms. I know you will keep us up to date! - j