 |
Member
|
|
Join Date: Aug 2006
Location: Brooklyn, NY
Posts: 805
|
|
Member
Join Date: Aug 2006
Location: Brooklyn, NY
Posts: 805
|
Hi all, Yes, I really am feeling incredibly better, so much so that I feel I can address and think about the neuropathy again. It's been almost 3 years that the back has been such a pain that the feel and hands paled in comparison.
I told my neuro (who's been on my case only since the back, since I fired my last neuro for not picking up the cyst) that I was hearing that sensory neuropathy can be CIDP, and he said yes, and that perhaps I should have a spinal tap. He thought it could be done when I'd have amyelogram for the back pain, but since the back pain is so minor just now, I'm surely not having a mylogram, so wonder what he will say.
I asked him if I could have an MRI of the brain, because I was concerned about problems with word finding an memory, and he said yes. This is another thing I would have paid any attention to two months ago.
But it would be nice to be reassured that nothing else is going on, or know that there is an intervention if there's a flare. I can't help but notice how many people have ended up getting IVIG and benefitting. I'm thinking we need to get our doctors to look for CIDP more aggessively, rather than justa cceept the diagnosis of "idiopathic" or "cryptogenic".
Is there a spell check here? Because I really don't want to re-read and correct all my typos?
__________________
LizaJane
.
--- LYME neuropathy diagnosed in 2009; considered "idiopathic" neuropathy 1996 - 2009
---s/p laminectomy and fusion L3/4/5 Feb 2006 for a synovial spinal cyst
|