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Old 08-13-2007, 05:22 AM
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darlindeb25 darlindeb25 is offline
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darlindeb25 darlindeb25 is offline
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Join Date: Aug 2006
Posts: 744
15 yr Member
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Another thread I totally understand. The other day, I was getting a drink from a water bottle, I brought my hand around with the cap and it went flying across the room. My daughter just looked at me and then she broke out laughing. It did seem very funny, but honestly, I never felt that cap leave my hand and where did the force come from that made it fly like that? I too drop, then drop again, and again, then again, and some days, I slam my fist down on the counter, only to be sorry I did that too. The frustration can sometimes be more than we want to handle.

Turning in the shower with my eyes closed nope!!!!! Just the other day I did that and I guess I should be thankful my apartment only has a shower without a tub, when my head connected with the shower door, I didn't fall. Considering I am recovering from surgery, it's a good thing I didn't fall.

A few weeks ago, we had a nasty storm go through this area and our power went out. Our office has no back up lighting, bless my boss' heart, he doesn't think we need it! Well, my part of the office was totally black. The ins person and I were standing at my desk discussing a patient when the power went out--now I know what happens to me in total darkness. I was totally disoriented, totally off-balance, I could feel myself swaying--thank God my desk was right in front of me! The ins person grabbed my arm and led me out to the front doors and light, by this time, my claustrophobia had kicked in and I could hardly breathe. When they finally got me settled back down, the doc I work for asked exactly what I felt and then he says, "You tell your neuro exactly what happened, he needs to know this!"

I am never in total darkness. I do know I can't close my eyes and stand steady, yet this was a true test of what happens to me in the dark!!!! Not the way I would prefer to be tested, but I guess now I know!!!!!
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We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
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