Hi - for any of you on Medicare or who may know - would appreciate any feedback - I can no longer get IVIG at home and its been cut off by my home infusion agency cause they say Medicare will only pay for the home nursing if homebound - I see my neuro in about a week and half - but he's gone from having to stop giving infusions in his office - to having his Medicare patients now kicked off home infusion care... and any info I can go in with may help...

I talked to Medicare and their defination of homebound is really rather vague (I got someone reading from a book - nice person but really no help).....

Do you have to be bedbound? to be homebound? The only time I get out is when I pay an agency to drive me to the doctor - medical transporation for disabled here is available and I used to use them - but they have left me stranded (you cannot change a pickup time unless they have someone available, and its usually not an option)... (this is my only way to get to the hopsital if they are still doing infusions there - but its impossible to set pickup time - one can wait between one to four hours for the medicine to be brought up from the pharmacy and then the infusion is another four and a half hours - and when its done they want you OUT - so setting a time for ride home is really impossible) (which is also why I cant schedule with the agency I pay for transporatation now because the time has to be set two days in advance)

So, again, anyone in this situation or know anyone that has qualifed for "homebound" under Medicare? And if so, what are the specs???

Thanks

kmeb