I mentioned in prior thread - but Medicare isnt actually supposed to pay for home nursing care (thus the infusion nurse) for the diagnosis of CIDP - only PID (Primary Immune Dificiency)... the agency I had been with had been taking Medicare patients only because they had their own pharmacy and were contracted with my Medicare Part D (which covers meds) - and thats how they were making their money... I didnt find this out until they cancelled their contract with my insurance and told me I could change Plan D's, but still no guarantee of getting home infusions any more - and no one else will pick up Medicare patients that I can find because its a loss to them.... I finally have found a pharmacy that will give me the IVIG if I am classfied as "homebound" which is necessary for Medicare to pay for the home nursing...

I dont know of any infusion sites around here (the infusion agency I had is in 48 states and sends out nurses to homes only) - (I had my first five rounds done in the hospital as an outpatient and the rest have been at home) - but will ask the doc about infusion centers - cause if they run on time could get ride set up.... (if there are some this may be the only option - because govt regs keep changing regarding reimbursement rates for IVIG for CIDP and many more hospitals are expected to stop administering to outpatients)