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Old 08-14-2007, 08:33 AM
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MelodyL MelodyL is offline
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Join Date: Aug 2006
Posts: 8,292
15 yr Member
MelodyL MelodyL is offline
Wise Elder
MelodyL's Avatar
 
Join Date: Aug 2006
Posts: 8,292
15 yr Member
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Both my husband and I have neuropathy.
Here's my story.

I'm diabetic, and I was told over a year ago that the tips of my toes were numb (this was during a neurological exam at Cornell). I had no idea. I never ever touched the tips of my toes so there would be no way I could notice they were numb.

So I had absolutely no pain for 6 months. I go to the podiatrist, he cuts my toenails and uses a vibrating instrument on them. I jump out of the chair and he says "oh, you have feeling, feeling is good, we want feeling". I said 'are you serious, this is horrible". He went to explain that you don't want numbness, you want feeling" What I felt that day was what I would consider HYPERFEELING.

Well, when I went home, I got it full blown, buzzing, burning, pins and needles. I went nuts. Lasted about 5 hours.

I then started Methyl B-12 and I only get occasional burning. So I'll take this anytime over the pins and needles and buzzing. Drove me out of my mind.


Now here's my husband's story. His name is Alan.

When he was 45 or so, he felt something between his toes. He thought it was Athletes Foot. After it didn't go away, he went to a podiatrist who tested him and said "no, you have Neuropathy". That began a journey to various doctors who didn't know neuropathy from a hole in a wall. We found out that many things cause neuropathy. Only recently did we find out he has autoimmune stuff going on. Now 15 years ago, if we had found the right specialist and that specialist had ordered a spinal tap, maybe my husband could have gotten help sooner.

But he's on the IVIG and he says that exercise (in his case), lifting weights, doing the bike, helps his PN BIG TIME!!!

Hope this helps. Melody
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