hey there rockin4epilepsy,

i wanted to say - i really admire your campaign and your efforts.

your love for your little guy shines so bright.

===========================

i hope you aren't having to cope with movement disorders in your life/your family, etc. too.

my child experiences generalized progressive dystonia and dyskinesia, cerebral palsy, seizures....

he takes artane and prn diazepam/lorazepam. ultimately he may have dbs surgery (deep brain stimulation, similar to VNS but electrodes are implanted deep in the brain). The NS backup plan is to have a baclofen pump implanted.

-wonderboy's mom