hello joaD, don't know if we've met before, but wanted to say hi.

i am glad for your child that you are able to manage without meds = they are rough! it's nice to read about your child, and to have fellow travelers on this road of cp+dystonia/dyskinesia.



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hey there buttons! I am so glad to read you are doing better with the myoclonus. what wonderful news.

you were a big help to me over my son's myoclonus, which has almost completely disappeared now except when he has a seizure.



wish it would have taken the dystonia with it.


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wonderboy's mom