I think this is the case because the symptoms can mimic so many other things; there isn't a true consensus (that I know of) about which tests are 100% definitive for it ( i'm sure this will stir some "stuff" up); the sx vary from person to person. That, and doc's for the most part aren't taught about it, and what they hear from their colleagues isn't true. oh, and for the most part we "look" healthy. I had a "friend" in school for PT who had a teacher say that RSD and TOS weren't really illnesses, that it was all in your head.
arggggghhhhhhhhhhhhhh......

good thread Lin!!