oooh, i like this thread. It reaffirms my hope that someday I'll meet someone having a similar story to mine (you know, to better share notes with)!

So, the current diagnosis is ideopathic small fiber sensory neuropathy with the primary being PAIN!

It started when I was about twelve and was assessed as 'growing pains'. It was only in my legs and from the mid-calf down--but not to the toes, just to mid foot. It only happened in the evening (around bed time) and only a few times a month. I used to ask my stepfather to 'rub the pain out' as massage relieved symptoms while it was happening. I'd somehow manage to fall asleep with the pain and it would be gone in the morning. I also occasionally got burning feet/cold feet. All of these symptoms were/are always bilateral.

The pain is an inside pain that defies description but radiates outward seemingly feeling like from it comes from the bone. It's not acute like I paper cut but constant [like bad menstrual cramps in my legs, I guess] and every bit as discomforting and disruptive to concentration/life.

About 4 years ago the frequency increased and became at first every evening, and then it turned into every day, all day.

I currently have no abnormal finding in the EMG/NCV but my sensations are less in the foot area when it comes to the tuning fork thingy and the safety pin.